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The Diagnosis Dilemma: Navigating ADHD & Autism Diagnosis as an Adult

Writer's picture: Megan D'AngeloMegan D'Angelo

The Many Paths to Understanding Your Neurodivergent Brain: A Guide to ADHD & Autism Diagnosis


Hey there! Let's discuss a topic that comes up in almost every coaching call I have: diagnosis. Should you pursue a formal diagnosis? Is self-diagnosis valid? And what's the deal with ADHD and autism often showing up together? Let's dive into this complex topic with honesty and nuance.

The Three Paths: Formal, Informal, and Self-Diagnosis
Before we get into the nitty-gritty, let's acknowledge something important: there isn't a single "right" way to understand your neurodivergent brain. Each path has its own benefits and challenges.


Formal Diagnosis: The Official Route
A formal diagnosis typically involves evaluation by psychiatrists, psychologists, or specialized clinicians. Here's what you need to know:

Pros of Formal Diagnosis:
  • Access to medication and medical support
  • Legal protections under disability laws
  • Workplace and academic accommodations
  • Insurance coverage for treatments
  • Validation from medical professionals
  • Clear pathway to support services

Challenges to Consider:
  • Often expensive ($1,000-$5,000 without insurance)
  • Long waiting lists (sometimes 6-12 months)
  • Can be emotionally draining
  • Potential impact on insurance rates
  • Possible workplace stigma
  • May affect certain career paths (military, aviation)

Working with a Coach or Therapist: The Middle Path
Many adults choose to work with ADHD coaches or therapists without pursuing a formal diagnosis:

Benefits:
  • Immediate access to support
  • Focus on practical strategies
  • Flexibility in approach
  • No medical records or labels
  • Can still provide significant insight


Limitations:
  • Therapists and coaches cannot prescribe medication
  • No legal protections per ADA
  • May not qualify for formal accommodations
  • Less "official" validation (but still VALID)

Self-Diagnosis: The Personal Journey
Self-diagnosis is increasingly recognized as valid in neurodivergent communities. Here's why:

Advantages:
  • Cost-free
  • No gatekeeping
  • Personal pace of discovery
  • Access to online communities
  • Freedom to explore identity
  • No professional bias

Considerations:
  • May miss co-existing conditions
  • No access to medical support
  • Possible misconceptions
  • Limited external validation
  • No formal accommodations

The ADHD-Autism Connection: When One Diagnosis Leads to Another
Here's something fascinating: ADHD and autism often travel together, but we might not recognize both initially. Research suggests that 30-80% of adults with autism also have ADHD, and many adults with ADHD show autistic traits.


Why the Overlap Matters:
  • Shared executive function challenges
  • Similar sensory processing differences
  • Common social communication patterns
  • Overlapping stims and coping mechanisms
  • Related needs for routine and structure

Common Scenarios:
  1. The ADHD First Path: You get diagnosed with ADHD, but something still feels unexplained. Maybe your sensory needs or social patterns don't quite fit the ADHD narrative alone.
  2. The Autism First Path: Your autism diagnosis explains a lot, but you're still struggling with focus, organization, and impulse control.
  3. The Double Discovery: You realize you're both autistic and ADHD simultaneously, often through self-discovery or professional evaluation.

Making Your Decision: Questions to Consider
When deciding your path forward, ask yourself:
  1. What are your primary goals?
    • Medical support?
    • Self-understanding?
    • Workplace accommodations?
    • Community connection?
  2. What resources are available to you?
    • Financial means
    • Time availability
    • Local healthcare options
    • Support system
  3. What feels right for you right now?
    • Comfort with medical systems
    • Personal readiness
    • Current life stability
    • Support needs


Moving Forward: Your Action Plan
If You're Considering Formal Diagnosis:
  1. Start documenting your experiences
  2. Research local specialists
  3. Check insurance coverage
  4. Gather childhood records if possible
  5. Consider starting with your primary care physician
If You're Exploring Self-Diagnosis:
  1. Join online communities
  2. Read reputable resources
  3. Keep a symptom journal
  4. Connect with other neurodivergent people
  5. Consider working with a coach
If You're Suspecting Both ADHD and Autism:
  1. Learn about both conditions separately and together
  2. Notice your unique pattern of traits
  3. Consider whether understanding both would benefit you
  4. Discuss your observations with professionals
  5. Connect with others who have both

The Bottom Line

There's no wrong way to understand your neurodivergent brain. Whether you choose a formal diagnosis, self-diagnosis, or something in between, the goal is the same: better understanding yourself and getting the support you need to thrive.

Remember, diagnosis (in any form) isn't the end goal. In fact, I often see it as the beginning of a journey. It's a tool for deep understanding and accessing support. Focus on what will help you live your best life, whether that includes official paperwork or not.

 
Need Support on Your Journey?
As an ADHD coach who works with many neurodivergent adults, I can help you:
  • Explore your patterns and traits
  • Develop coping strategies
  • Navigate the diagnosis process
  • Find resources and community
  • Create systems that work for your unique brain

Ready to discuss your path forward? Let's chat about how coaching can support your journey.



About the Author: As an ADHD coach working with neurodivergent adults, I've guided countless individuals through their diagnosis journeys. I understand the complexity of these decisions and provide support based on both professional expertise and community understanding.

 

Keywords: ADHD diagnosis, autism diagnosis, self-diagnosis, adult ADHD, adult autism, neurodivergent adults, ADHD autism overlap, ADHD coaching

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